Adolescence is already a challenging stage in life - for both parents and teens alike - but what happens when you throw in a rare disorder? We speak to Azhar Talib, whose daughter has Prader-Willi syndrome, and Prof Dr Muhammad yazid Jalaludin, a consultant paediatric endocrinologist, to discuss what it’s like managing a rare disorder and the child’s health during that transition phase from childhood into adolescence and later into adulthood.

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