BFM 89.9

HIGHLIGHTS  PRN2023
Podcast  >  Bigger Picture  >  Health & Living  >  Budget 2023: We Need To Invest in Rare Diseases

Budget 2023: We Need To Invest in Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS) | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre

03-Oct-22 16:00

Budget 2023: We Need To Invest in Rare Diseases

There are more than 7,000 types of rare diseases, yet the interest and investment into rare diseases are often limited to a handful of more well-known diseases. For people living with rare diseases and their families, the journey from diagnosis to accessing treatment can take a huge emotional and financial toll. Ahead of the tabling of Budget 2023, we speak to Nadiah Hanim Abdul Latif, President of the Malaysian Rare Diseases Society and Prof Dr Thong Meow Keong, consultant paediatrician and clinical geneticist from UMMC on how we can do better to support the rare disease community in Malaysia and whether we’ll finally see rare diseases being on the priority list. 

Brought to you by Mah Sing. Reinvent Spaces. Enhance Life.

Click here to view a transcript of the show.

Image credit: Shutterstock

Produced by: Lim Sue Ann

Presented by: Lim Sue Ann


This and more than 60,000 other podcasts in your hand. Download the all new BFM mobile app.

Categories:  managing diseasemedical advances

Tags:  genetic counsellorsrare diseaseorphan drugsgeneticsbudget 2023belanjawan 2023Budget-2023-Mahsing





Play / Pause

Listen now : The Breakfast Grille Repeat

Today’s Shows



6:00 AM

The 6AM Stretch

7:00 AM

World Market Watch

7:15 AM

Morning Brief

8:00 AM

The Breakfast Grille

Musdalifa bin Abdullah, CEO of Ground Team Red (GTR)

8:30 AM

Morning Brief

9:00 AM

Opening Bell

9:35 AM

The Property Show

10:05 AM

Open For Business

Mohamed “Mo” Tarek El-Fatatry, Electronic Recycling Through Heroes (ERTH)

11:05 AM

HerVantage

Wong Ling Yah

12:00 PM

Enterprise Biz Bytes

1:00 PM

The Breakfast Grille Repeat

2:05 PM

Live & Learn

Who Decides What’s “Disrespectful” and “Insulting”?

3:05 PM

Earth Matters

Stories from Upper Baram Pt 2: Saving Rivers, Lives, and Restoring Rights

4:05 PM

Health & Living

Occupational Therapy’s Role in Returning To Work

5:00 PM

The Evening Edition

5:35 PM

Today On Twitter

6:05 PM

Inside Story

7:05 PM

The Evening Edition

7:35 PM

Popcorn Culture

8:00 PM

Cruise Control

Daniel Fernandez, dsf.my | Ariff Roose | Richard Bradbury

10:00 PM

The Pulse