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Brain Waves #37: SMA Awareness Month - Living With A Rare Disease During COVID-19

Dr Azlina Ahmad Annuar, Neurogeneticist | Siti Safura Jaapar, Living with SMA

13-Aug-20 16:00

Brain Waves #37: SMA Awareness Month - Living With A Rare Disease During COVID-19

Living with a rare disease can already be challenging, and even more so during a global pandemic. On this Brain Waves episode, we speak to neurogeneticist Dr Azlina Ahmad Annuar and Siti Safura Jaapar who lives with spinal muscular atrophy to find out how people with rare diseases, especially SMA, are coping as well as how the pandemic has affected the advocacy for access to much-needed treatment in Malaysia.  

Image Source: AFP

Produced by: Lim Sue Ann

Presented by: Tee Shiao Eek


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Categories:  Health PolicyDiseases and ConditionsMental HealthHealthy LivingFitnessScienceMedical Innovation and Technology

Tags:  The Bigger PictureHealth & LivingCOVID-19rare diseaseSMAgenetic disordernervous systematrophy


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