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Podcast  >  Bigger Picture  >  The Daily Digest  >  Public Policy Measures a Game Changer for Rare Disease Community?

Public Policy Measures a Game Changer for Rare Disease Community?

Dato’ Hatijah Ayob, President of Malaysian Rare Disorders Society, Chair of the Rare Disease Alliance Foundation Malaysia | Professor Dr. Thong Meow Keong, Professor of Paediatrics and Consultant Clinical Geneticist at UMMC, Advisor of Malaysian Rare Disorders Society

26-Feb-21 14:00

Public Policy Measures a Game Changer for Rare Disease Community?

While there are more than 7,000 types of rare diseases, they affect a small percentage of the world’s population. But people who are affected often face life-threatening and chronic conditions. Additionally, there are virtually no cures for rare diseases, and the majority of them don’t even have treatments. With the number of these diseases growing, we look at how public policy measures and funding can better help the rare disease community and how it might increase access to treatment.

Image Source: Shutterstock

Produced by: Hezril Asyraaf

Presented by: Tee Shiao Eek, Lim Sue Ann


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Tags:  The Bigger PictureThe Daily DigestRare DiseaseRare Disease DayPublic PolicyMalaysian Rare Disease CommunityGovernment/Regulatory/Policy MakingHealthcare, Pharma, BiotechOther personality interviewsHealthHealth PolicyDiseases & ConditionsMental HealthHealthy LivingFitnessMedical Innovation and TechnologyPoliticslaw & legal mattersScienceSocial Issues


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