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Showing 1 to 17 of 26 results.
 



Budget 2023: We Need To Invest in Rare Diseases

Budget 2023: We Need To Invest in Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS) | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre

Doctor in the House: Can Patients With Mucopolysaccharidosis Get Treatment?

Doctor in the House: Can Patients With Mucopolysaccharidosis Get Treatment?

Dr George Lee, Consultant Urologist | Prof Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist | Rubee Ahmad, Parent

Brain Waves: Identifying Rare Disease Genes

Brain Waves: Identifying Rare Disease Genes

Dr Azlina Ahmad Annuar, Neurogeneticist

Rare Disease Day 2022: Young People Living With A Rare Disease (Part 2)

Rare Disease Day 2022: Young People Living With A Rare Disease (Part 2)

Jaden Lim, Living with Growth Hormone Deficiency and Pituitary Microadenoma

Budget 2022: Did We Get A Budget that Puts Health First?

Budget 2022: Did We Get A Budget that Puts Health First?

Dr Khor Swee Kheng, Independent Health Policies Specialist

Brain Waves: The Promise of Gene Therapy

Brain Waves: The Promise of Gene Therapy

Dr Azlina Ahmad Annuar, Neurogeneticist | Assoc Prof Dr Cheah Pike See, Department of Human Anatomy

Brain Waves: Living with SMA in Malaysia

Brain Waves: Living with SMA in Malaysia

Dr Azlina Ahmad Annuar, Consultant Neurogeneticist | Dr Ch’ng Gaik Siew, Consultant Clinical Geneticist & Paediatrician | Yap Sook Yee, Parent and Co-founder

Doctor in the House: International Pompe Day

Doctor in the House: International Pompe Day

Dr George Lee, Consultant Urologist | Dr Ngu Lock Hock, Consultant Paediatrician | Sivasangaran Kumaran, Father

Brain Waves: Angelman Syndrome

Brain Waves: Angelman Syndrome

Dr Azlina Ahmad Annuar, Neurogeneticist | Safiah bt Safian, Parent

Public Policy Measures a Game Changer for Rare Disease Community?

Public Policy Measures a Game Changer for Rare Disease Community?

Dato’ Hatijah Ayob, President of Malaysian Rare Disorders Society, Chair of the Rare Disease Alliance Foundation Malaysia | Professor Dr. Thong Meow Keong, Professor of Paediatrics and Consultant Clinical Geneticist at UMMC, Advisor of Malaysian Rare Disorders Society

Brain Waves #40: Prader-Willi Syndrome

Brain Waves #40: Prader-Willi Syndrome

Dr Azlina Ahmad Annuar, Neurogeneticist | Azhar Talib, President

Brain Waves #37: SMA Awareness Month - Living With A Rare Disease During COVID-19

Brain Waves #37: SMA Awareness Month - Living With A Rare Disease During COVID-19

Dr Azlina Ahmad Annuar, Neurogeneticist | Siti Safura Jaapar, Living with SMA

Doctor in the House: World Rare Disease Day 2020

Doctor in the House: World Rare Disease Day 2020

Dr George Lee, Consultant Urologist | Prof Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

Living with a Rare Disease

Living with a Rare Disease

Bruce Lim, President, Malaysian Patient Organisation for Primary Immunodeficiencies (MyPOPI)

Spinocerebellar Ataxia

Spinocerebellar Ataxia

Prof Datin Dr Norlinah Mohamed Ibrahim, Consultant Neurologist, Hospital UKM | Fiona, Living with SCA | Daniel, Caregiver

The Daily Digest: SMA Awareness Month

The Daily Digest: SMA Awareness Month

Joyce Lee, Adult living with Spinal Muscular Atrophy

 
 




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