BFM 89.9

HIGHLIGHTS 
Podcast  >  Bigger Picture  >  Health & Living  >  Budget 2023: We Need To Invest in Rare Diseases

Budget 2023: We Need To Invest in Rare Diseases

Nadiah Hanim Abdul Latif, President, Malaysian Rare Diseases Society (MRDS) | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist, University Malaya Medical Centre

03-Oct-22 16:00

Budget 2023: We Need To Invest in Rare Diseases

There are more than 7,000 types of rare diseases, yet the interest and investment into rare diseases are often limited to a handful of more well-known diseases. For people living with rare diseases and their families, the journey from diagnosis to accessing treatment can take a huge emotional and financial toll. Ahead of the tabling of Budget 2023, we speak to Nadiah Hanim Abdul Latif, President of the Malaysian Rare Diseases Society and Prof Dr Thong Meow Keong, consultant paediatrician and clinical geneticist from UMMC on how we can do better to support the rare disease community in Malaysia and whether we’ll finally see rare diseases being on the priority list. 

Brought to you by Mah Sing. Reinvent Spaces. Enhance Life.

Click here to view a transcript of the show.

Image credit: Shutterstock

Produced by: Lim Sue Ann

Presented by: Lim Sue Ann


This and more than 60,000 other podcasts in your hand. Download the all new BFM mobile app.

Categories:  managing diseasemedical advances

Tags:  genetic counsellorsrare diseaseorphan drugsgeneticsbudget 2023belanjawan 2023Budget-2023-Mahsing





Play / Pause

Listen now : BFM 89.9 -- The Business Station

Today’s Shows



6:00 AM

The 6AM Stretch

7:00 AM

World Market Watch

Vishnu Varathan, Head of Economics & Strategy, Mizuho Bank

7:15 AM

Morning Brief

7:30 AM

Morning Brief

Gary Ng, APAC Economist, Natixis

7:45 AM

Top Story

Ibrahim Suffian, Programme Director, Merdeka Centre

8:00 AM

The Breakfast Grille

Lavernt Chan, Chief Executive Officer of MYMBN Bhd

8:30 AM

Morning Brief

Dr. Amjad Rabi, Visiting Expert, Social Wellbeing Research Center (SWRC), Universiti Malaya

8:45 AM

Morning Brief

Eddin Khoo, Historian and Writer

9:00 AM

Opening Bell

9:15 AM

Opening Bell

9:35 AM

Pressing Matters

Wathshlah Naidu, Executive Director, Center for Independent Journalism

10:05 AM

Open For Business

Dhawal Shah, Regional Managing Director and Co-founder of 2Stallions

11:05 AM

P&L

Deadline Looming: LHDN’s SVDP 2.0: To Use Or Not To Use? With Harvindar Singh, Managing Partner, Harvey & Associates

12:00 PM

Enterprise Explores

Unlocking Private Capital Via Share Liquidity Programs & Tokenisation with Kelvin Lee, Chief Executive Officer, Alta

1:00 PM

The Breakfast Grille Repeat

Lavernt Chan, Chief Executive Officer of MYMBN Bhd

2:05 PM

Today I Learned

Why Do People Self-Sabotage?, Dr Joel Low, Clinical Psychologist

3:05 PM

Earth Matters

Smoke and Mirrors - The Realities of Plastic Credits and Offsetting, Emma Priestland, Global Corporate Campaigns Coordinator, Break Free From Plastic Movement

4:05 PM

Health & Living

Humans of Healthcare: The Nurse, Jeovelyn Samoya, Community Outreach Nurse

5:00 PM

Top 5 at 5

6:00 PM

Inside Story

7:05 PM

Today I Learned [REPEAT]

7:30 PM

Just For Kicks

Giancarlo Gallifuoco | Sean Malhotra | Keeshaanan Sundaresan

9:00 PM

GGWP

10:00 PM

Wavelength